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Could the future of Addison's disease treatment be more personalised? Dr Thomas Upton shares the latest developments in the U-RHYTHM system, a groundbreaking wearable device designed to monitor indivdual hormone levels continuously over 24 hours.
28 November 2023
For many people living with Addison's disease and adrenal insufficiency, standard cortisol replacement therapy does not fully replicate the body's natural hormone patterns. The PULSES trial set out to explore whether pulsatile cortisol pump therapy could bridge that gap. In this interview, Consultant Endocrinologist Dr Georgina Russell discusses the research journey, key findings and what this innovative treatment could mean for future hormone replacement therapies.
13 November 2023
Associate Professor Ian Ross of the University of Cape Town is raising awareness of adrenal insufficiency as a potentially overlooked complication of HIV and its associated treatments. Drawing on years of research and clinical experience, he highlights the importance of recognising adrenal insufficiency in people living with HIV and improving diagnosis and care.
5 June 2023
Read Dan Stewart’s firsthand account of experiencing an adrenal crisis and emergency hospital admission while living with Addison’s disease. Learn practical advice on emergency injections, steroid emergency cards and how to be prepared when every minute matters
20 April 2023
Working with the Royal College of General Practitioners (RCGP), the ADSHG has launched a free eLearning module to improve GP awareness of adrenal insufficiency and Addison's disease. The course helps healthcare professionals recognise symptoms, support earlier diagnosis and improve the management of adrenal crisis and long-term care.
18 April 2023
Good care coordination can make a significant difference to people living with Addison's disease and adrenal insufficiency, helping to improve safety, confidence and quality of life. Sherwin Criseno explains how the innovative '4E framework', Engage, Educate, Equip and Empower, is helping patients, carers and healthcare professionals work together to prevent adrenal crisis and support effective long-term condition management.
20 February 2023
Working with NHS Digital, the ADSHG helped update the NHS information on Addison's disease to reflect current best practice, expert guidance and patient needs. The updates include improved information on emergency injection kits, steroid emergency cards, Sick Day Rules and support services for people living with adrenal insufficiency.
2 December 2022
Joanne Brown, an Endocrine Clinical Nurse Specialist at Stockport NHS Hospital, shares how she created an Addison's Disease Awareness Day stand to educate healthcare professionals about adrenal insufficiency and steroid dependency. Her experience highlights the value of raising awareness in hospitals and improving patient safety through education and engagement.
22 November 2022
New standalone guidance for steroid-dependent patients has been added to the Joint Royal Colleges Ambulance Liaison Committee (JRCALC) guidelines, helping ambulance clinicians deliver faster and more consistent emergency care. Developed with input from the Addison's Clinical Advisory Panel and ADSHG, these guidelines reinforce the urgent treatment of adrenal crisis and improve patient safety across the UK
28 May 2022
What happens when someone with adrenal insufficiency is admitted to hospital? Endocrine Nurse Specialist Becci Watling explains how an innovative alert system is helping improve patient safety, treatment and support.
26 May 2022